Rare Diseases

Born with rare renal rickets and living with 80% disability, Mumbai-based Aboli Jarit grew up around hospital visits and home-schooling. Years later, she found her way to Indian Idol auditions and wheelchair modelling, building a life many once thought unlikely.

Coimbatore’s Radhika JA upcycles newspapers into dolls, which have found orders from across the world. She shares how her diagnosis led her to this successful business.

For Dhanya Ravi seeing her parents cry every time she would be rushed to the hospital or when she would refrain from eating a cake fearing her teeth would break was more heartbreaking and painful than breaking bones.

The children suffering from rare diseases need special care, which is hard to find.

The good news is that with timely diagnosis and appropriate treatment, rare disease patients can get some relief and lead better lives.