muscular dystrophy

Moushmi Kapadia is an avid biker, trekker and a mom of two. Her older son Vedansh has Rigid Spine Muscular Dystrophy (RSMD) but has beaten all odds to travel the globe with his mom. This is her story of finding herself in motherhood and discovering the joy of travel.

ISRO Scientist and IIT graduate Kartik Kansal, who suffers from muscular dystrophy, turned rejection into motivation, and never gave up on his dream to clear the UPSC. Here’s his story of championing the toughest of feats.

Watch this video to see how Naidhroven, a resident of Chennai who suffers from muscular dystrophy, rose above rejection for his disability to start his own e-vehicle company to help lakhs of disabled persons improve their standard of living.

Shriyansh Srivastava (25) suffers from Facioscapulohumeral Muscular Dystrophy (FSHD), a genetic muscle disorder wherein the muscles of the face, shoulder blades, and upper arms are among the most affected. Read his incredible story here.

The Sangam rehabilitates and empowers people with physical and mental impairments. In its three decades, it has embraced more than 330 villages in four blocks of Tirunelveli district, touching a population of over six lakh.

What’s also important to note is that these rare diseases are country specific. For instance, malaria is not considered a rare disease in India, but it is one in the USA.

Aarthi Sampath writes about the struggles of living with muscular dystrophy and how the arts helped her cope with her condition.

Often when we face challenges in life we get disheartened and give up. Nishtha is an example of sheer courage as she has been fighting muscular dystrophy for several years now, not allowing it to make her a "dependent". Not only this, she is on a mission to spread awareness about the cause and is helping similar patients to overcome this disability and lead "normal" lives. Read her inspiring story of courage and dedication.